After two weeks of having guests come over and visiting me I come with some rules..., well not rules, more guidelines about coming to see me. Hoping these help facilitate a better experience for you. If not, then hopefully it will give you insight into how I am doing.
Rule the First: I am not here to entertain you.
So don't expect me to. I will be happy to converse with you.Watch TV with you. Possibly even play a board game with you. We can do things together and that is fine. But if your board I am not going to go out of my way to be more entertaining. This also means if I need to sleep, I'm going to go to bed. I get drained easily and you must respect that if I need to lie down, I am going to lie down.
Rule the Second: You must be paiteint when I speak, For I must type to Converse
This seems obvious but you'd be surprised. Especially when I'm in a room with several people or multiple conversations going on. I can only type so fast, so often by the time I finish a thought the conversation has moved, often is drastic and mind boggling ways.
Rule the Third: Don't Hide your Emotions:
Your here to celebrate my life with me.But also to morn the years I wont be able to groove with you. So if you need to cry that's fine. If you want to smile and joke, thats right up my ally. If your angry and want to punch me, tha'ts assault, and I'd prefer you didn't. But we can discuss where that anger comes from and what its really about...
Also don't be embarrassed about asking questions. I'm not embarrassed about answering them. Any thing I can do to help I'll do. No subject is off limits. And I promise to answer honestly.
Rule the Fourth: Don't mind my things; ie noises, coughing, feeding, flem, spitting and meds
In polite society we try not to cough or sneeze around others.We discretely fix blemishes and blow our noses. We eat in small bites chew small bits and don't talk with our mouth full. Now I've never been in "polite society" but I often try to be polite. I am now cursed to fail at that. Noises abound from the whole in my neck. Sounds man is not meant to hear nor make. From the neck hole also comes coughs that produce copious amounts of Flem and mucus.The pain I have when I swallow means I often have an abundance of saliva. So I often go and run to the bath room to spit. When that is unavailable I spit in the living room trash can. If I'm outside I spit on the ground. Also, sometimes I close my eyes when we are talking or if a group is talking. This has nothing to do with how tired I am. It helps me focus. It helps me really get to know what people are saying. Closing my eyes has almost nothing to do with how tired I am.
Rule the Sixth: You Don't Need to Bring me Gifts
Fairly self explanatory. You can (as long as it isn't a book). And I'll try to enjoy it as long as I can. But since that won't be too long, you may want to save your money. No their is one key exception to that, I am still waiting for art to come in. Tattoos were the ONE thing he said I could still do. That being said I don't think I'd make it to the tattoo shop, but letters and self made Art really make me feel tons better.
Now I'm sure these guidelines don't cover everything. I'm sure I could have added more or less. But no matter what I put down something would be missing. All I really want to say is Thank You those who've come to visit me, Thank You to those who've wrote to me, and Thank You for reading my Blog. I hope to see or here from you soon.
thank you, thank you for the info; i had questions about what to say (or not).
ReplyDeletei felt stupid for not bringing back the book sooner & bringing back a cookbook as well.
Noah, you a very brave man with a ton of courage.
Se ya tomorrow
live well
Well said brother..
ReplyDeleteWay to be specific and tell people what you need. I really admire/can learn from you.
I would like to begin a painting for you. Any imagery, subject matter, dreams that you are partial to right now? or I can just go with my intuition.
lots of love,
Jaime
@ Gordon, thanks man, hope you get better soon.
ReplyDelete@Jamie thanks a lot. Just paint whatever is in your heart or blowing through the wind. I'm somewhat partial to ying yangs and Celtic circles and knots, but you don't need to put them in anything.
Lots of love,
--Noah